Diane Jensen: Changing events today

Sunday, October 11, 2015

Changing events today - sudden turns

Going home today with oxygen and two antibiotics on IV. Don't know our ETA as yet, but we ARE coming home. (1 pm )

Going home on hold!

She started to have a lot of difficulty in breathing. Two doctors and four nurses and an aid came running. Increased O2, ordered Lasix and a portable chest xray stat. Pushing Lasix now and xray is on the way. Two nurses are standing by watching her. Doctor came in again. (3:30) Stephen and Aaron have been here. Aaron and I gave her a blessing. Lasix has taken off some of the fluid and she is breathing easier now. Her fever came back at 103.82, got tylenol and it has dipped to 102.5 now. Took a chest xray too. No apparent change.

Heading into ICU NOW. (5:15) getting the second unit of platelets soon. Then another later. ICU doctor doing exam now. (6 pm ) Going to do a CT scan to check lungs, belly, etc.

4 comments:

JennOctober 11, 2015 at 7:16 PM
Man this stinks! I'm glad you were still at the hospital when it happened, but wish you were feeling better! I think of you often and you are in our prayers!
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JennOctober 11, 2015 at 7:16 PM
Man this stinks! I'm glad you were still at the hospital when it happened, but wish you were feeling better! I think of you often and you are in our prayers!
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CatherineOctober 11, 2015 at 9:18 PM
Sending lots of love and prayers. Hang in there!
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Connie JeppesenOctober 12, 2015 at 12:07 AM
Great nurses and doctors, Fantastic family support. Many friends who are praying and fasting. One very sweet, strong lady. So sorry for your pain. Heavenly Father knows you and really does love you. Together we can get through this battle.
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Diane is very thankful for any well wishes, even if she is not able to respond to all of them.

Diane's MDS Diagnosis

The hospital encourages visits when she is home or inpatient. Call first to insure she feels well enough at any particular time for visiting. Her immune system is severely compromised, so we ask you not to visit with young children or if you are ill. Currently she is an outpatient.

Myelodysplastic Syndrome (MDS) is a bone marrow disease much like cancer. If left untreated, it will eventually lead to the failure of the bone marrow (requiring transfusions) or Leukemia.

The only way to prevent this is undergoing a bone marrow transplant. Presently, her blast counts are increasing faster than expected but have not reached the level of Leukemia. Her blood counts are lower now and she has had a transfusion to help with this. She is to proceed with the bone marrow transplant now because of how rapidly the MDS is progressing.

Diane will enter the LDS Hospital's Bone Marrow Transplant Unit on Wednesday, December 17^th. She will undergo alternating rounds of chemotherapy for about 2 weeks. The chemotherapy will kill the blood producing cells, as well as her immune system.

Once the blast counts are reduced enough, then Diane will receive a stem cell (bone marrow) transplant. Diane’s sister, Tracey, is a half match and is to be the stem cell donor. However, effort is still underway to get a full match in time for the transfusion. The purpose of the transplant is to have the healthy stem cells replace the unhealthy ones killed by the chemotherapy (in the bone marrow). Once the transplant is done she will be on medicine to prevent rejection for some time (estimated 6 months to a year).

Mid term bone marrow biopsy coming up on (day 17) Friday, Jan. 2 nd. Find out if more chemo might be needed after the results of that test come back. Then another biopsy about day 35. Transplant could take place around day 42 the doctor said.

At this time (June 30) no transplant is scheduled. The disease became active again about mid June. Her blast numbers increased rapidly within just a weekend. Had they been able to do transplant (June 8) it would NOT have been successful, and she would have gone thru much trama for nothing. She has started another round of chemo aimed at controlling the MDS to lower blast levels.

Both the chemotherapy and the stem cell transfusion will be very hard on Diane. We ask for your prayers of strength and comfort on her behalf.

This site will be updated with Diane’s progress.