Diane Jensen: Day 14, not a bad hair day...

Tuesday, December 30, 2014

Day 14, not a bad hair day...

...in fact it's a NO HAIR day. Yup, it was falling out rapidly-all over the place. So, the nurse and Diane had a cutting party and took it all off. Today is another good day and she was able to ride the stationary bike and we took a half mile walk in the halls. We saw a "newby" in the hall with one of the cute and crazy nurses on a tour his first day, we told him not to believe everything she told him and the next lap we said to him, "RUN!". Several friend visits today, one brought lunch, one brought nuts--great protein, thanks, and her sister- in-law brought chocolate pretzels and a magazine. Getting platelets infused today. Another 7 pounds of water loss as well. Thanks to everyone for the thoughts, well wishes, treats and prayers; all this makes this cubicle a little bit more bearable. If we've missed saying thanks to you, please accept this sincere Thanks! Bless you.

1 comment:

JeremyDecember 30, 2014 at 5:58 PM
Looking good grammie! Kristina and Sheri (my friends from missouri) send their well wishes and support and we do too! Let me know if you want me to look for a beanie. Love you.
-jordy
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Diane is very thankful for any well wishes, even if she is not able to respond to all of them.

Diane's MDS Diagnosis

The hospital encourages visits when she is home or inpatient. Call first to insure she feels well enough at any particular time for visiting. Her immune system is severely compromised, so we ask you not to visit with young children or if you are ill. Currently she is an outpatient.

Myelodysplastic Syndrome (MDS) is a bone marrow disease much like cancer. If left untreated, it will eventually lead to the failure of the bone marrow (requiring transfusions) or Leukemia.

The only way to prevent this is undergoing a bone marrow transplant. Presently, her blast counts are increasing faster than expected but have not reached the level of Leukemia. Her blood counts are lower now and she has had a transfusion to help with this. She is to proceed with the bone marrow transplant now because of how rapidly the MDS is progressing.

Diane will enter the LDS Hospital's Bone Marrow Transplant Unit on Wednesday, December 17^th. She will undergo alternating rounds of chemotherapy for about 2 weeks. The chemotherapy will kill the blood producing cells, as well as her immune system.

Once the blast counts are reduced enough, then Diane will receive a stem cell (bone marrow) transplant. Diane’s sister, Tracey, is a half match and is to be the stem cell donor. However, effort is still underway to get a full match in time for the transfusion. The purpose of the transplant is to have the healthy stem cells replace the unhealthy ones killed by the chemotherapy (in the bone marrow). Once the transplant is done she will be on medicine to prevent rejection for some time (estimated 6 months to a year).

Mid term bone marrow biopsy coming up on (day 17) Friday, Jan. 2 nd. Find out if more chemo might be needed after the results of that test come back. Then another biopsy about day 35. Transplant could take place around day 42 the doctor said.

At this time (June 30) no transplant is scheduled. The disease became active again about mid June. Her blast numbers increased rapidly within just a weekend. Had they been able to do transplant (June 8) it would NOT have been successful, and she would have gone thru much trama for nothing. She has started another round of chemo aimed at controlling the MDS to lower blast levels.

Both the chemotherapy and the stem cell transfusion will be very hard on Diane. We ask for your prayers of strength and comfort on her behalf.

This site will be updated with Diane’s progress.