Diane Jensen: Clinic, Doctors, transfusions routine......

Tuesday, September 29, 2015

Clinic, Doctors, transfusions routine......

Here again at the clinic today. Seems like the old saying really applies: "same stuff, different day".

We saw three different doctors today, one the PA, one the infectious diseases doc and a BMT doctor. Dr Asche says that the Revlimid is causing the platelets count to be low and Revlimid can cause clots, but she is going to discontinue the anti clotting medication shot for now, because the platelets counts are remaining low. Even when she gets more than one unit of platelets, she doesn't get much benefit from the second unit. So she feels the clotting is not as relevant in light of the risk of bleeding. They will continue to monitor her closely and make changes as required. We're grateful for their expertise and for them being willing to listen to their gut feelings along with the medical training.

They are going to have her get on a regimen of anti-nausea meds to help curb the sick feelings she is having presently. Hope this helps her feel better overall.

We hear from many of you and are grateful for your thoughts and prayers. Thanks again, and again. We love you all!

1 comment:

Sherry RogersSeptember 29, 2015 at 6:43 PM
Much LoVe to both of you! You are continually in my thoughts and prayers.
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Diane is very thankful for any well wishes, even if she is not able to respond to all of them.

Diane's MDS Diagnosis

The hospital encourages visits when she is home or inpatient. Call first to insure she feels well enough at any particular time for visiting. Her immune system is severely compromised, so we ask you not to visit with young children or if you are ill. Currently she is an outpatient.

Myelodysplastic Syndrome (MDS) is a bone marrow disease much like cancer. If left untreated, it will eventually lead to the failure of the bone marrow (requiring transfusions) or Leukemia.

The only way to prevent this is undergoing a bone marrow transplant. Presently, her blast counts are increasing faster than expected but have not reached the level of Leukemia. Her blood counts are lower now and she has had a transfusion to help with this. She is to proceed with the bone marrow transplant now because of how rapidly the MDS is progressing.

Diane will enter the LDS Hospital's Bone Marrow Transplant Unit on Wednesday, December 17^th. She will undergo alternating rounds of chemotherapy for about 2 weeks. The chemotherapy will kill the blood producing cells, as well as her immune system.

Once the blast counts are reduced enough, then Diane will receive a stem cell (bone marrow) transplant. Diane’s sister, Tracey, is a half match and is to be the stem cell donor. However, effort is still underway to get a full match in time for the transfusion. The purpose of the transplant is to have the healthy stem cells replace the unhealthy ones killed by the chemotherapy (in the bone marrow). Once the transplant is done she will be on medicine to prevent rejection for some time (estimated 6 months to a year).

Mid term bone marrow biopsy coming up on (day 17) Friday, Jan. 2 nd. Find out if more chemo might be needed after the results of that test come back. Then another biopsy about day 35. Transplant could take place around day 42 the doctor said.

At this time (June 30) no transplant is scheduled. The disease became active again about mid June. Her blast numbers increased rapidly within just a weekend. Had they been able to do transplant (June 8) it would NOT have been successful, and she would have gone thru much trama for nothing. She has started another round of chemo aimed at controlling the MDS to lower blast levels.

Both the chemotherapy and the stem cell transfusion will be very hard on Diane. We ask for your prayers of strength and comfort on her behalf.

This site will be updated with Diane’s progress.